It has been 10 years since I started to work on a project that later became “Autistic Initiative for Civil Rights,” the first autistic self-advocacy group in Russia and Ukraine, created by autistic people for autistic people. In a region where most “psychiatrists” couldn’t distinguish autism from schizophrenia, and autistic people were considered to be a “childhood diagnosis” by many “experts,” the idea seemed weird. Especially because I was promoting a neurodiversity paradigm: An idea that the diversity of human brains is normal. The problem of autistic people is not in autism itself, but in discrimination and stereotypes, and being autistic is an even bigger part of me than being trans. Autistic people need support, not a cure.
No wonder that our first allies were LGBTQ organizations, because LGBTQ people knew better than others what it meant when people considered you to be ill and damaged because of their biases.
But there is another reason why the autistic and LGBTQ communities have always been close. There is a connection between being autistic and being LGBTQ.
“People who do not identify with the sex they were assigned at birth are three to six times as likely to be autistic,” as the largest study committed on this topic showed. Most of the studies show that the rate of LGB people among the autistic community is two to three times higher.
I started to write about it in Russian, creating special websites and social media projects about LGBTQ autistic people, because Russian is the most common language in post-USSR. I hate Russian politics, but I wanted a wider audience.
I translated a lot of great personal stories written by LGBTQ autistic people from English into Russian, and most of the stories I translated were from the U.S..
For years, autistic communities in different countries used the American autistic community as an example and sometimes even as a role model because so many great disability rights activists and autistic activists came from the U.S.
For example, as a young teenager who’d just found out that they were autistic, I was deeply inspired by the news that autistic activist Ari Ne’eman became the first openly autistic presidential nominee in American history after President Barack Obama in 2009 appointed Ari to the National Council on Disability. I read it in times when, in Russian and Ukrainian, almost all information was written in a way that was telling me that I don’t have a future. And even this information was mostly translations of some old American big charities’ texts. It was American, not Ukrainian or Russian activists who questioned those biases.
For autistic people like me, the American autistic activists, including American LGBTQ activists, were the anchor.
And now, when the autistic community in the U.S. is under attack from the MAGA government, it may have a global impact, harming not just autistic people in the U.S. but autistic people worldwide, and LGBTQ autistic people will suffer the most.
Robert F. Kennedy, the new secretary of the U.S. Department of Health and Human Services, promoting the idea that autism is caused by vaccines. In Russia, it is a very common stereotype, and many general practitioners believe in it. I used to speak about WHO norms and American and European studies to fight it, and I am sure that many activists in countries with poorer medicine and higher risks of disease that can be prevented by vaccination did the same. But now, when the leading health organization in an extremely influential country is saying that vaccines cause autism, it made people stop vaccinating their kids globally, which will increase the possibility of a new epidemic.
But there is another problem, an even bigger one, from a moral perspective. Kennedy is erasing years of autistic fights to stop making autism look like a health crisis.
Moreover, on Feb. 13, President Donald Trump issued an executive order stating that the administration would be creating a commission to attempt to lower the population of autism. People like me are called to be part of an “epidemic.”
In reality, there is no “epidemic” of autism; it is just more specialists who are able to diagnose autism and more people who are ready to search for a diagnosis for them and their children, and autistic people are not a problem for “our [American] economy and our security.”
I spoke with Sam Crane, an autistic disability policy expert and a former legal and policy director of the Autistic Self-Advocacy Network, the organization I used as an example when I was creating my own autistic initiative group:
“Calling autistic people a threat to our country and reopening the discussion about autism and vaccines does nothing to help us,” Crane said. “We need access to healthcare, community-based supports, education, and civil rights — all of which are under threat under this administration. We also need to support research on actual quality-of-life issues, including research by autistic researchers ourselves — both of which this administration has defunded. This especially hurts autistic people who face other kinds of discrimination, such as autistic people of color and autistic LGBTQ people. People who have filed discrimination complaints about multiple kinds of discrimination have had their investigations halted — forcing them to drop their complaints about race or gender discrimination in order to keep their disability discrimination claims active. People may soon be forced to decide between getting gender-affirming healthcare and getting community-based services for their disability-related needs. We deserve real support, but instead this administration is treating us like a problem to be solved.”
Indeed, the Trump administration treated both autistic and LGBTQ people — especially trans people — as a problem to be solved.
LGBTQ autistic people will suffer one of the first, partly because they have fewer chances to fight LGBTQ-phobia and systemic discrimination. And there is also a risk that LGBTQ groups may not understand why they should fight for their autistic siblings.
It will have a broader impact because of the visibility of American activist communities — both autistic and LGBTQ communities. Stereotypes about autistic LGBTQ people will travel across borders just like autistic self-advocacy spread across the world.
Also, there were USAID programs that helped disabled people and LGBTQ people abroad, and this help now will be stopped.
MAGA is not just harming autistic LGBTQ people in the USA, it’s harming them globally.
It is April; Autism Awareness Month, promoted by a big charity that was globally demonizing autism, but autistic activists reclaimed April, making it Autistic Acceptance Month.
Now autistic activists, especially autistic LGBTQ activists, need to reclaim the narrative about their lives once again, and the LGBTQ community needs to help them in doing this. This is a fight against the system. Autistic LGBTQ people will always be a part of both the autistic and the LGBTQ community. The question is, would a LGBTQ community help us in this critical moment of our history?
Link to story by Ayman Eckford for the Washington Blade
